So one can think that we did nothing but rummage through rubbish and sanitize old furniture during the time we were in Denmark this time around. Well my mum did, cuz she is like I used to be, not able to relax and always have to have something to do. Even tanning is sort of like a forced activity when u look at her. But I spent alot of time in the hammock (what should I name her?), reading, knitting and listening to podcasts.
Recommendation of the month is "The secret history" by Donna Tartt. I can honestly not say why I liked it so much, maybe because I had friends in uni who also were students of the classics and they too belonged to a slightly different, paralell world that the rest of us didn´t grasp, when they dove in to discussions of Homer, Hesiod, details of Spartan society or ancient greek pronounciation. This tale of a bunsh of spoiled american college students, escalating in to various substance abuse actually even makes me want to give Dante another go.
Gran finally gave in and tried it
Tranekaer castle mill
Mum couldn´t relax and brought home bagfulls of weaving yarn and initiated a 3 day-sanitizing process
Now I didn´t feel too crap as long as I didn´t attempt any longer ventures than down the beach (water was surprisingly warm). On a few occasions we went to larger towns like Rudköping and Svendborg, something that would have been impossible without me being pushed around in a wheelchair. And even then I spent the following 24 hours in near unconciousness when we got back. This scenario seeming to have become the established order of things, and then we´re still talking about the "good" periods.
I celebrated my first anniversary as an ME sufferer on the 18th of july. I dunno how to describe what it feels like anymore. Thanks to various pills I guess I can focus on the few things I can do and in short bursts forget about the bigger picture. While in Denmark I can take being on public display. People stare, and I can honestly not say that I wouldn´t have stared at a woman in dreadlocks being pushed around by her 76-year old grandma, wondering what the heck is wrong with her. But when at home it happens that I need to come along to the local shopping centre, having my mum wheel me around like a packet in a shopping trolley. And then I am terrified that we will meet someone I used to know. What would I say? What would they say? I know I haven´t got anything to be embarassed about, but that is just what I am. I was always the one who never gave up, who could push myself and my body further than anyone else. Now all pushes just make me worse, and when I´m really tired I even look like I´m sporting a bit of a mental disabillity too, only a bit of drooling that´s missing. I prefer to stay at home. This re-defining of self is a work in progress I guess, and maybe I will relax about it in a few years.
A snapshot looking more or less normal, the ferry back to Sweden
Recommendation of the month is "The secret history" by Donna Tartt. I can honestly not say why I liked it so much, maybe because I had friends in uni who also were students of the classics and they too belonged to a slightly different, paralell world that the rest of us didn´t grasp, when they dove in to discussions of Homer, Hesiod, details of Spartan society or ancient greek pronounciation. This tale of a bunsh of spoiled american college students, escalating in to various substance abuse actually even makes me want to give Dante another go.
Gran finally gave in and tried it
Tranekaer castle mill
Mum couldn´t relax and brought home bagfulls of weaving yarn and initiated a 3 day-sanitizing process
Now I didn´t feel too crap as long as I didn´t attempt any longer ventures than down the beach (water was surprisingly warm). On a few occasions we went to larger towns like Rudköping and Svendborg, something that would have been impossible without me being pushed around in a wheelchair. And even then I spent the following 24 hours in near unconciousness when we got back. This scenario seeming to have become the established order of things, and then we´re still talking about the "good" periods.
I celebrated my first anniversary as an ME sufferer on the 18th of july. I dunno how to describe what it feels like anymore. Thanks to various pills I guess I can focus on the few things I can do and in short bursts forget about the bigger picture. While in Denmark I can take being on public display. People stare, and I can honestly not say that I wouldn´t have stared at a woman in dreadlocks being pushed around by her 76-year old grandma, wondering what the heck is wrong with her. But when at home it happens that I need to come along to the local shopping centre, having my mum wheel me around like a packet in a shopping trolley. And then I am terrified that we will meet someone I used to know. What would I say? What would they say? I know I haven´t got anything to be embarassed about, but that is just what I am. I was always the one who never gave up, who could push myself and my body further than anyone else. Now all pushes just make me worse, and when I´m really tired I even look like I´m sporting a bit of a mental disabillity too, only a bit of drooling that´s missing. I prefer to stay at home. This re-defining of self is a work in progress I guess, and maybe I will relax about it in a few years.
A snapshot looking more or less normal, the ferry back to Sweden
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